I am so frustrated in my search for information on Miles's eye condition. There is plenty of information out there on Nystagmus, but it nearly all only applies to nystagmus in both eyes, and mostly the jerking variety. His is nothing like that, but I'm understanding now why it is a nystagmus diagnosis and not a lazy eye diagnosis.
I wish I had spent more time talking to the doctor. I think I'm going to call him sometime this week and try to talk to him or someone in his office. I feel like I just need more information or it's going to drive me insane. It's the not knowing that bothers me. I think knowing what this is going to mean will be much better than wondering about all the things it could mean.
For a day or so I have thought about calling to reschedule the MRI for later, maybe next month. But after reading (I know, I know) that they could be looking for a tumor, that was enough to change my mind. We'll go through with it this month. Money is still a problem, but we won't be paying for it at the time like it's a fast food joint. We'll have time.
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